Our current advocacy priorities: 

Our current advocacy strategy is guided by the following priorities:

1. Work to improve healthcare affordability and patient access to care by seeking reforms to out-of-pocket medical expenses.
2. Support reduction of the impact of burdensome utilization management protocols on patients suffering from autoimmune and immune-mediated conditions.
3. Assist with addressing and barriers that impact patient care. 
4. Support legislative proposals that address health disparities and promote equity for medically underserved populations.
5. Raise funding and improve awareness of autoimmune and immune-mediated conditions on the state and national levels. 
6. Work to educate and empower the autoimmune and immune-mediated community. 

Legislative Initiatives: 

Formation of New Office of Autoimmune Disease Research (2023)

Link: https://orwh.od.nih.gov/in-the-spotlight/all-articles/orwh-announces-formation-of-new-office-of-autoimmune-disease-research

Pediatric Autoimmune Neuropsychiatric Disorders – Modification of Coverage Requirements (2023)

Link: https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0820?ys=2022RS

Earlier Legislative Initiatives:

The Scleroderma Research and Awareness Act (2010)

Link: https://www.gillibrand.senate.gov/news/press/release/gillibrand-introduces-legislation-to-expand-research-and-awareness-of-scleroderma/